
I know that I suffer from extreme forms of mental health. It has been this way for many years and I am okay with this. You know I have been on medication for a lot of years and again I am okay with that.
So last Wednesday I feel like I hit a fork in the road. The dr explained to me that I have Tardive Dyskinesia very severely as a result of quetiapine that I was on. It was a really low dose. I talked to the psychiatrist but I am feeling awful. Extremely tried and weak and still so unbelievable shaky. He has cut my dose in half and I am using clonazepam as I need to for the shaking. The shaking is absolutely no better.
No that we are making these changes I need to come up and a new plan as I am not feeling well at all. I am also a little nervous and scared as this medication has been the only thing that as kept me stabled.


Oh no! Wow, that’s really quite rare on multiple levels. Quetiapine is pretty low-risk for TD to begin with, but especially at low dose. And TD most often comes on gradually, so for it to suddenly be severe and not to have been picked up at all before seems odd. It makes me wonder if something else is going on that’s getting missed.
There isn’t conclusive evidence that reducing the medication dose necessarily improves TD, and it’s likely to worsen symptoms initially. And to just say screw it, you can go undermedicated is totally irresponsible.
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Thanks for your input on this. We lowered the Seroquel dose in half with the help of the psychiatrist. The tremors are still really bad. Definitely not better. I am talking tomorrow with the specialist that I saw over the shaking on the phone as she is trying to help with the migraines I am also getting. Not sure what to do
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Good luck. I hope you’re able to get this sorted out.
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Thanks I am really hoping so but I am kind of developing the thinking that this is me and learn to adapt to it.
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